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GIST Talk

"Caution" All Gleevec Patients, Please Read This!

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Your questions or comments are welcome here. Remember that this is a public forum and anyone may read your posts here. If you have a question about Gleevec (STI571) or the trials. You might want to look at the FAQ (Frequently Asked Questions) page. It contains the answers to some of the most common questions about Gleevec.

 

More GIST information can be found at the following links:

  GIST Support International
  The Life Raft Group
  100 Questons & Answers about Gastrointestinal Stromal Tumor
 

 

 

 

 

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To start a new subject...Post from the bottom of this page.

How is effect of new drug? -- Hyun-Jung, 4/19/2008 

New Website for help with gist -- Mike, 3/3/2008 
RE: New Website for help with gist -- KANHAIYALAL RANKA, 6/28/2008 

wall thickening -- Dee, 2/24/2008 
RE: wall thickening -- jan, 2/29/2008 

taking off meds -- olwyn mcglynn, 1/17/2008 
RE: taking off meds -- Carol Jones, 2/13/2008 
RE: taking off meds -- Olwyn, 2/19/2008 

Gleevec and Sunitinib (Sutent) have stopped working -- Kathy, 11/29/2007 
RE: Gleevec and Sunitinib (Sutent) have stopped working -- Beverly Shirts, 12/2/2007 
RE: Gleevec and Sunitinib (Sutent) have stopped working -- Beverly Shirts, 12/2/2007 

husband has Gist tumor -- Fran Guptill, 10/3/2007 
RE: husband has Gist tumor -- Bev Shirts, 10/4/2007 
RE: husband has Gist tumor -- Elissa, 3/17/2008 

Tango dancing.... poker for gist..... -- molly, 9/21/2007 
RE: Tango dancing.... poker for gist..... -- Beverly Shirts, 10/4/2007 

other treatment for gist -- barbara, 8/27/2007 
RE: other treatment for gist -- Bev Shirts, 9/1/2007 
RE: other treatment for gist -- Marina, 9/3/2007 
RE: other treatment for gist -- Arunava Ghosh, 2/27/2008 
RE: other treatment for gist -- Bernie, 2/28/2008 

GIST Info -- raju shah, 8/26/2007 
RE: GIST Info -- Marina, 9/3/2007 

complications w/ GIST -- Kirsten, 8/2/2007 
RE: complications w/ GIST -- Marina, 8/3/2007 
RE: complications w/ GIST -- jayne watkins, 1/17/2008 

gallbladder -- Dee, 7/20/2007 
RE: gallbladder -- Marina, 7/22/2007 

AVN944 drug trials  -- Don, 6/12/2007 

Marcel Szyszkowski -- Beverly Shirts, 6/7/2007 

sutent -- maha, 5/11/2007 
RE: sutent -- Marina, 5/12/2007 
RE: sutent -- moamen, 6/20/2007 
RE: sutent -- Glen, 4/24/2008 

Gleevec 100 mg -- Tempest, 4/13/2007 
RE: Gleevec 100 mg -- Bev, 4/29/2007 
RE: Gleevec 100 mg -- n, 10/4/2007 

Marcel's update -- Marcel, 4/8/2007 
RE: Marcel's update -- Jerry Mayfield, 4/18/2007 
RE: Marcel's update -- Marina, 4/18/2007 
RE: Marcel's update -- Bev Shirts, 4/29/2007 
RE: Marcel's update -- Jerry Mayfield, 4/29/2007 

post gastroectomy recovery and eating problems -- Tempest, 3/3/2007 
RE: post gastroectomy recovery and eating problems -- yvonne, 3/11/2007 
RE: post gastroectomy recovery and eating problems -- Leslie, 5/15/2007 

Gleevac after surgery for benign tumor -- Karen, 2/23/2007 
RE: Gleevac after surgery for benign tumor -- Jan, 3/28/2007 
RE: Gleevac after surgery for benign tumor -- Bev Shirts, 4/29/2007 

RE: pediatric gist/carney triad -- yvonne, 2/7/2007 

Made in India Gleevec -- Sam Borhan, 11/29/2006 
RE: Made in India Gleevec -- Marina, 12/4/2006 
RE: Made in India Gleevec -- ali, 4/22/2008 

I will be out of country for about a week. -- Jerry Mayfield, 11/27/2006 

How much is price of sutent? -- Hyun-Jung Yang, 10/31/2006 
RE: How much is price of sutent? -- ayman, 3/7/2007 

Just Diagnosed -- Dean and Stacey Hughes, 10/17/2006 
RE: Just Diagnosed -- yvonne, 10/17/2006 
RE: Just Diagnosed -- Dean and Stacey Hughes, 10/17/2006 
RE: Just Diagnosed -- Bev Shirts, 10/24/2006 
RE: Just Diagnosed -- yvonne, 11/8/2006 
RE: Just Diagnosed -- Dean and Stacey Hughes, 12/6/2006 
RE: pediatric gist/carney triad -- phyllis gay, 1/29/2007 
RE: Just Diagnosed -- marge , 6/12/2007 
RE: Just Diagnosed -- jayne watkins, 1/17/2008 
RE: Just Diagnosed -- Bernie, 2/28/2008 

Im very confused -- don gordy, 10/14/2006 
RE: Im very confused -- marcel, 10/15/2006 
RE: Im very confused -- eleanor, 1/21/2007 
RE: Im very confused -- Bev Shirts, 10/17/2006 
RE: Im very confused -- Bev Shirts, 10/17/2006 
RE: Im very confused -- jelby, 12/11/2006 

AMN107 failing -- marcel, 9/16/2006 
RE: AMN107 failing -- Beverly Shirts, 9/17/2006 
RE: AMN107 failing -- Marina, 9/17/2006 
RE: AMN107 failing -- marcel, 9/17/2006 
RE: AMN107 failing -- Marina, 9/27/2006 
RE: AMN107 failing -- Jerry Call, 10/5/2006 
RE: AMN107 failing -- Tony P, 9/25/2006 
RE: AMN107 failing -- Tony P, 11/4/2006 
RE: AMN107 failing -- Lee Kavaloski, 5/30/2007 

Retroperitoneal Liposarcoma -- Lori, 9/10/2006 
RE: Retroperitoneal Liposarcoma -- Beverly Shirts, 9/17/2006 
RE: Retroperitoneal Liposarcoma -- Lori, 9/23/2006 

Marcel hits the front page again -- marcel, 7/31/2006 
RE: Marcel hits the front page again -- Tony P, 8/11/2006 
RE: Marcel hits the front page again -- marcel, 8/12/2006 
RE: Marcel hits the front page again -- Tony P, 8/13/2006 
RE: Marcel hits the front page again -- marcel, 8/13/2006 
RE: Marcel hits the front page again -- Tony P, 8/14/2006 
RE: Marcel hits the front page again - Tony -- marcel, 8/14/2006 
RE: Marcel hits the front page again -- Bernie-, 2/1/2008 
RE: Marcel hits the front page again -- Marcel Passed, 3/17/2008 

reacuring GIST, inoperable,hoping for a miracle -- Kellie Briggs 6/23/06, 6/23/2006 
RE: reacuring GIST, inoperable,hoping for a miracle -- Bev Shirts, 6/23/2006 
RE: reacuring GIST, inoperable,hoping for a miracle -- joe , 9/8/2006 
RE: reacuring GIST, inoperable,hoping for a miracle -- Fran Guptill, 3/30/2007 
RE: reacuring GIST, inoperable,hoping for a miracle -- Kathy, 11/29/2007 

Nilotinib, aka AMN107 in the news -- Marcel, 6/14/2006 
RE: Nilotinib, aka AMN107 in the news -- Marina, 6/18/2006 
RE: Nilotinib, aka AMN107 in the news -- marcel, 6/19/2006 
RE: Nilotinib, aka AMN107 in the news -- Bev Shirts, 6/20/2006 
RE: Nilotinib, aka AMN107 in the news -- Renata Hetman, 9/12/2006 

Blue Cross & PET Scans -- Craig , 6/12/2006 
RE: Blue Cross & PET Scans -- Beverly Shirts, 6/18/2006 
RE: Blue Cross & PET Scans -- Marina, 6/18/2006 

matastasic gist -- Edward, 5/31/2006 
RE: matastasic gist -- Marina, 6/1/2006 
RE: matastasic gist -- Bev Shirts, 6/3/2006 
RE: matastasic gist -- Edward, 6/7/2006 
RE: matastasic gist -- yvonne, 6/7/2006 
RE: matastasic gist -- Marina, 6/10/2006 
RE: matastasic gist -- Edward, 6/11/2006 

GrapeFruit Juice -- marcel, 5/9/2006 

Important message from Marcel -- marcel, 4/27/2006 
RE: Important message from Marcel -- marina, 4/29/2006 
RE: Important message from Marcel - Marina -- marcel, 4/29/2006 
RE: Important message from Marcel - Marina -- Marina, 4/30/2006 
RE: Important message from Marcel - Marina -- marcel, 4/30/2006 
RE: Important message from Marcel - Marina -- marina, 4/30/2006 
RE: Important message from Marcel - Marina -- DVK, 9/23/2006 

GIST infos sur des métastases pulmonaires  -- rimo sarah, 3/30/2006 
RE: GIST infos sur des métastases pulmonaires  -- Bev Shirts, 4/2/2006 
RE: GIST infos sur des métastases pulmonaires  -- Beverly Shirts, 4/2/2006 
RE: GIST infos sur des métastases pulmonaires  -- Mark Landesman, 4/2/2006 
RE: GIST infos sur des métastases pulmonaires  -- SARAH, 12/8/2007 

post surgery -- Sue Z, 3/22/2006 
RE: post surgery -- Bev Shirts, 3/22/2006 
RE: post surgery -- ARTI DHARPURE, 4/10/2006 
RE: post surgery -- Marina, 3/22/2006 

Recurrence of GIST -- Tom, 3/10/2006 
RE: Recurrence of GIST -- Marina, 3/11/2006 
RE: Recurrence of GIST -- Tom, 3/11/2006 
RE: Recurrence of GIST -- Caryl J. Graham, 3/20/2006 
RE: Recurrence of GIST -- Marina, 3/22/2006 
RE: Recurrence of GIST -- Bernie, 2/1/2008 
RE: Recurrence of GIST -- Reg, 2/15/2008 
RE: Recurrence of GIST -- reg, 2/18/2008 
RE: Recurrence of GIST -- Bernie, 2/18/2008 
RE: Recurrence of GIST -- MICHELE, 3/21/2008 
RE: Recurrence of GIST -- MICHELE, 3/21/2008 

AMN107 update -- Marcel, 2/28/2006 
RE: AMN107 update -- yvonne, 2/28/2006 
RE: AMN107 update -- Marina, 2/28/2006 
RE: AMN107 update -- Beverly Shirts, 2/28/2006 
RE: AMN107 update -- Jerry Mayfield, 3/3/2006 
RE: AMN107 update -- marcel, 3/8/2006 
RE: AMN107 update -- Marina, 3/11/2006 
RE: AMN107 update -- marcel, 3/11/2006 
RE: AMN107 update -- marcel, 3/22/2006 
RE: AMN107 update--Marcel, GOOD LUCK! -- Bev Shirts, 3/22/2006 
RE: AMN107 update -- Marina, 3/22/2006 
RE: AMN107 update -- marcel, 3/23/2006 
RE: AMN107 update -- Jim, 4/11/2006 
RE: AMN107 update -- marcel, 4/12/2006 
RE: AMN107 update -- Jim, 4/12/2006 
RE: AMN107 update - Jim -- marcel, 4/13/2006 
RE: AMN107 update - Jim -- Jim, 4/13/2006 
RE: AMN107 update -- yvonne, 4/14/2006 
RE: AMN107 update -- Jim, 4/19/2006 
RE: AMN107 update -- Mei, 4/19/2006 
RE: AMN107 update -- marcel, 4/19/2006 
RE: AMN107 update -- Jim, 5/11/2006 
RE: AMN107 update -- Jim -- marcel, 5/12/2006 
RE: AMN107 update -- Jim -- Jim, 5/15/2006 
RE: AMN107 update -- Sutent  -- Jim , 6/13/2006 
RE: AMN107 update -- Sutent -- Jim -- marcel, 6/24/2006 

Got an appointment at MSKCC -- Harriet, 2/27/2006 
RE: Got an appointment at MSKCC -- One more question, 2/27/2006 
RE: Got an appointment at MSKCC -- Marina, 2/27/2006 
RE: Got an appointment at MSKCC -- Jerry Call, 2/28/2006 
RE: Got an appointment at MSKCC -- Marina, 2/28/2006 
RE: Got an appointment at MSKCC -- Jerry Call, 2/28/2006 

Doctors at MSK -- Harriet, 2/23/2006 
RE: Doctors at MSK -- Jerry Call, 2/23/2006 
RE: Doctors at MSK -- Harriet, 2/24/2006 
RE: Doctors at MSK -- Jerry Call, 2/24/2006 
RE: Doctors at MSK -- Marina Symcox, 2/26/2006 
RE: Doctors at MSK -- Jerry Call, 2/28/2006 
RE: Doctors at MSK -- Marina, 2/28/2006 
RE: Doctors at MSK -- Bev Shirts, 2/28/2006 
RE: Doctors at MSK -- yvonne, 2/26/2006 

CML -- Chrissie, 2/21/2006 
RE: CML -- marcel, 2/22/2006 

GIST Diagnosis -- Rob W, 1/30/2006 
RE: GIST Diagnosis -- Bev Shirts, 1/31/2006 
RE: GIST Diagnosis -- Marina, 2/1/2006 
Liver tumors --Marina, Yvonne -- marcel, 2/1/2006 
RE: Liver tumors --Marina, Yvonne -- Marina, 2/2/2006 
RE: Liver tumors -- Marina -- Marcel, 2/8/2006 
RE: Liver tumors -- Marina -- Marina, 2/13/2006 
RE: GIST Diagnosis -- Jerry Call, 2/23/2006 
GIST et métastases pulmonaires et hépathiques -- RIMO, 3/22/2006 
GIST et métastases pulmonaires et hépathiques -- RIMO, 3/22/2006 
RE: GIST Diagnosis -- Monica Heinz, 2/20/2007 

Sutent approved by FDA, AP release -- marcel, 1/26/2006 
RE: Sutent approved by FDA, AP release -- yvonne, 1/26/2006 

AMN 107 -- marcel, 1/23/2006 
RE: AMN 107 -- marco, 1/27/2006 
RE: AMN 107 -- Chrissie, 2/21/2006 
RE: AMN 107 -- Chrissie, 2/21/2006 

need information please -- Leslie Norton, 12/18/2005 
RE: need information please -- yvonne, 12/19/2005 

GIST around Esophagus New -- Larry, 11/30/2005 
RE: GIST around Esophagus New -- Marina, 11/30/2005 
RE: GIST around Esophagus New -- Larry, 12/1/2005 
RE: GIST around Esophagus New -- Marina, 12/1/2005 
RE: GIST around Esophagus New -- Larry, 12/2/2005 

Appropriate follow-up? -- debih2, 11/23/2005 
RE: Appropriate follow-up? -- Bev Shirts, 11/29/2005 

Appropriate follow-up? -- debih2, 11/23/2005 
RE: Appropriate follow-up? -- debih2, 11/23/2005 
RE: Appropriate follow-up? -- Emmanuel, 11/23/2005 
RE: Appropriate follow-up? -- yvonne, 11/23/2005 
appropriate follow-up -- debra, 11/28/2005 
RE: Appropriate follow-up? -- Bev Shirts, 12/19/2005 

ATT BEV SHIRTS -- Kristina, 11/3/2005 
RE: ATT BEV SHIRTS -- Bev, 11/5/2005 

Was surgery ever an option? -- Krissy, 10/28/2005 
RE: Was surgery ever an option? -- Bev Shirts, 10/29/2005 
RE: Was surgery ever an option? -- Marina, 11/2/2005 
RE: Was surgery ever an option? -- Kristina, 11/3/2005 

Dr taking me off Gleevec after 3 months? -- Krissy, 10/28/2005 
RE: Dr taking me off Gleevec after 3 months? -- yvonne, 10/28/2005 
RE: Dr taking me off Gleevec after 3 months? -- Krissy, 10/28/2005 
RE: Dr taking me off Gleevec after 3 months? -- yvonne, 10/31/2005 
RE: Dr taking me off Gleevec after 3 months? -- Lisa, 12/3/2005 

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